This City Championship will be held on Thursday, October 25th at 3:00PM at Cove Island Park in Stamford.
Each participant of the meet will be asked to collect "pledges" and raise funds for the Allyson Rioux Memorial Foundation. These funds will be gifted to Bryce Klingel, son of Cloonan Middle School Track Coach, Bobbi Barhydt.
Here is a little bit about Bryce in his mom's words:
Bryce is 4 months old and has a very rare congenital condition called Neurocutaneous Melanocytosis. There are 24 people in the world registered with this condition. It is so rare that it is not recognized by NORD - it is considered an orphan disease.
Being so rare there is no funding for research and there is no cure. As a family we have decided to raise money for his doctors so they can research and hopefully help him live longer than expected.
Bryce has had complications from his condition. He was shunted for hydrocephalus at 1 month old, started having seizures at 2 months old, and had a feeding tube put in to help gain weight and nutrition at 3 months old. He has been hospitalized for multiple days 3 times. He has had 2 mri's, many ultrasounds and x rays and a PET scan. He currently has home nursing checks and many doctor appointments.
He has been to Hartford, NYC and Texas to see doctors and is going to Chicago and possibly Boston. We go to the doctor at least once a week with Bryce for weight checks and check-ins to make sure he is maintaining or gaining strength and skills. Children with this condition usually do not make it to be a teenager- many die in the first year or as a toddler.
Inspite of all this Bryce is the happiest little boy. He loves his big brother and he always has a smile on his face. He can brighten a room in a moment. In one way or another he is going to make a difference in this world. He is very strong and even though he does not know it.... he is our blessing- He has taught us more in 4 months than I have ever imagined to learn.
He has a website which talks a bit about his journey. www.brycesjourney.com
We have met some fantastic people along his journey and we will continue to fight with Bryce! He is our love.
If you would like to make a donation,
please use the Pay Pal link on the left hand side of the screen.
All donations submitted to the Foundation through November 30, 2012
will be given to Bryce Klingel.
If you would like to donate and don't want to use the PayPal link - you can mail donations to:
The Allyson Rioux Memorial Foundation
The Allyson Rioux Memorial Foundation
PO Box 17297
Stamford, CT 06907-7297
and note "Bryce" on the check.
Thank you again for helping us support Stamford families in need!
The Allyson Rioux Memorial Foundation
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