(Riley pictured with her parents, Greg and Jennifer Perna)
Riley
June Perna was born prematurely weighing 1 pound 8 ounces on January 7, 2009 at
Yale Children’s Hospital. She remained there for 9 months after her birth.
Riley has several medical conditions which include Cerebral Palsy, Bilateral
Hearing Loss, Cortical Vision Loss, Hypoxic Ischemic Encephalopathy,
Bronchopulmonary Dysplasia, Congenital Hypotonia, Subglotic Stenosis and G-Tube
Dependence.
Riley
cannot sit independently, crawl, walk, talk, close her mouth, suck or swallow.
Despite her disabilities, she attends school, with a nurse, at St. Vincent’s
Special Needs School in Trumbull, Connecticut. There she receives Physical
Therapy, Occupational Therapy, Speech & Language and Vision Therapies.
Parents,
Greg and Jennifer, have privately funded alternative therapies such as
Hyberbaric Therapy, Cranial Sacral Therapy, Medic Physical Therapy and Oral
Motor Therapy. Some of these therapies are partially covered insurance.
However, most are not and are extremely expensive.
Within
the last year they have seen a significant change in Riley due to the
combination of intense standard and alternative therapies she receives. Through
therapy, their hope for Riley is that she will strengthen her core so she can
sit up, walk, swallow and eventually have her
tracheostomy removed.
We hope you will join us on Thursday, May 9, 2013 for the 25th Anniversary Golf Outing at Sterling Farms Golf Course in Stamford and Celebration Dinner at the Italian Center.
Our Golf and Dinner pamphlets will be will be going out in the mail in late March - but Celebration Dinner tickets can be purchased at anytime using our PayPal button to the left.
Click on the links at the top of the page to get more info about the Golf Outing and Celebration Dinner.
Click on the links at the top of the page to get more info about the Golf Outing and Celebration Dinner.
With your attendance and support, we look forward to assisting the Perna Family.
Thank you!
The Allyson Rioux Memorial Foundation
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